About Me

My name is Carson Thomas.  I was born 08-11-07

Our life came crashing down on Tuesday,  Jan. 29 2008 when the doctors gave us a diagnosis for Carson.  We are beginning the process of turning this nightmare into reality so that we can live our lives to their fullest.  Carson at 5 1/2 months is diagnosed with a very rare genetic disease called Menkes.  This means he has a Copper deficiency in his body.  Copper is a vital component in our bodies that helps all of our organs work.  Carson can not process the Copper he has, so Copper injections will not help at this point.  There are some case studies that have shown Copper injections work if started during pregnancy or within the first 10 days of life; but it is so rare that there is not much research going on.  Menkes affects 1 in 300,000, only males are affected by this.  This disease has no cure and in short this is a degenerative disease that will take his life.  At this point we can treat the symptoms, we are treating the seizures with meds and have them controlled for the most part, as with any seizure patients we will have bad seizure days.  The doctors do not know how long we have; we are going to live life one day at a time.   

We both come from families that are very strong and with the support from such great friends we have we know we will remain strong for Carson.  We will continue to need this wonderful support for years to come.

 Love - The Bowman’s

 Jeff, Sarah, and Carson